I have been trying to manage my chronic pain in ways that don't leave me zonked out 24/7. I've tried a specific old-school antidepressant that helps pain sometimes. I'm already on a couple other meds to manage my mental health so it had to be a balanced add-on since it could go toxic on me. As we increased the dose some of my nerve pain did go away. Great, right? Everything comes with a price. The last increase has made 3 hour afternoon naps a regular thing (along with a full night sleep) and it has become very obvious that it has increased my appetite, making my binge eating disorder more difficult to control. Fab. Just as I was thinking this med wasn't quite balancing out on the pro/con sheet I got a mildly frantic message from my doctor's office. Getting a mildly frantic message from your doctor's office...ON YOUR BIRTHDAY...is no way to round out the day. After a little phone tag I was told that my levels were too high on my last blood test and that the med could be moving into toxic levels. I needed to decrease today. Great. The thing about antidepressants is you can't just stop taking them. You need to slowly decrease. So I'm slowly stepping down off this med and my nerve pain is showing up again. To be extra whiny about this I will say that with the returning nerve pain I also still have the negative side effects of taking the med.
I hurt, I am sleepy all afternoon, I can't seem to CBT* my way out of the Halloween candy, and I have no idea if my blood levels are still high enough to be toxic. Fan-fucking-tastic.
All whining aside, I know that I have plenty of other good options to try. I have great support from my household and have learned how to deal with my pain in other ways. I see my doctor this week and we will discuss what else is available to me. I actually feel positive about trying something new. But you got to get the whining out somewhere and the interwebs are a vast space in which to dump all that whine!
*CBT: Cognitive Behavioral Therapy. A type of behavior modification that has proven effective in dealing with any unwanted behavior...like emotional eating.
Showing posts with label chronic pain. Show all posts
Showing posts with label chronic pain. Show all posts
Monday, October 29, 2012
Wednesday, October 17, 2012
The other things in my life.
I've been thinking....
This was never meant to be a ttc/infertility blog. I meant it to encompass all the different facets of my life. However, ttc/infertility hijacked my brain, hell, my life! I rarely blogged about anything else. Well, now that part of my life is coming to a close, most likely without me becoming a parent. I have been pondering what to do with this accidental ttc/infertility blog.
To put it bluntly, I want to get back to writing about my commitment to living in a D/s relationship with Monkey and Author. (For those not in the know, an educational quickie! D/s is short for Dominate/submissive. This dynamic falls under the larger umbrella of BDSM practices. For a definition of that acronym, google it yourself as I haven't the time to do a Kink 101 class.) However, my blog is listed and pops up on searches for queer ttc. This means many people who may not be comfortable with overtly sexual and kinky subject matters, let alone a lifestyle 24/7 D/s relationship, may show up here. They may be surprised and disturbed by suddenly surfing to what they think is a ttc/if blog and finding themselves knee deep in the ramblings of a kinky submissive.
On the other side of this, I am a kinky lifestyle submissive who was trying to get pregnant and deal with infertility. I don't like the idea of compartmentalizing my life into separate blogs. I've done it before and it felt very unnatural. It felt like I was hiding my submissive, kinky side. Like I should be secretive and ashamed of the way I am and the way I live. This, of course, is a load of bullshit. I am proud of who I am and the dedication I have to service. I'm not ashamed that I'm a masochistic either.
So here is my dilemma. Do I abandon this blog so that ttc/if followers and searchers don't get freaked out by the newer focus? Or do I continue my blog as it was first intended? A messy mash-up of my life as a kinky, submissive, poly, housemaker, hippyish, punkish, chronic pain suffering, infertile, depression-having, genderqueer.
I put the question out to the interwebs. Dear readers (all 3 of you) and guests, what are your thoughts?
Labels:
author,
BDSM,
chronic pain,
community,
D/s,
fertility,
friends,
getting pregnant,
giving up,
housequeer,
infertility,
mental health,
monkey,
poly,
sex,
ttc,
unexplained infertility
Friday, September 7, 2012
MIA
So, yeah, I've been missing all summer. I've been feeling pretty ambivalent about this blog. There is so much about ttc here. Coming to this blog seems like I must post about trying to get pregnant or infertility and that feels so...burdening. I do post about other things here but, well, after 6 years of ttc dominating my life those other things are few and far between. Blogging is good for me and I want to continue doing it. I just haven't figured out if it is time to retire this blog and start a new one or continue this one with a commitment to write more about the rest of my life? This will take some thinking.
In the meantime, here are some bullet point updates.
In the meantime, here are some bullet point updates.
- I'm still ttc with our latest known donor through the end of the year. We have put off our last two infertility intervention tries until at least January. I don't plan on continuing ttc after those tries. I often forget when my period is due now because I only pay attention around insem time. I've been emotionally distancing myself from the process with very little effort.
- Monkey is having a hysterectomy in November because of a hefty fibroid that has taken over his uterus. This doesn't really effect our ttc options as Monkey has never been a possibility for so very many other physical and mental health reasons. It does effect timing and this is why we are postponing the IF tries. I can't imagine trying to handle Clo.mid, IUIs and trigger shots while he is preparing, having, and recovering from surgery. Thankfully, the surgeon is confident that it will be laproscopic surgery so recovery time should be only a few weeks.
- I've spent the summer really trying to accept and embrace a modified life due to my chronic pain conditions. It has changed the way I do things HUGELY. It is still a struggle not to just push through the pain and finish this or that task. I still hate having to pace myself so carefully. I have managed to accept that I must do this or I will end up even more physically disabled than I already am.
- I've started baking bread weekly to supply the house rather than buying it. (We do have a back up loaf of store-bought bread this week because I've been sick.) I'm really hoping to get a winter veggie garden up and running as well. This is part of embracing homemaking as my career. I feel like there are so few role models for what I'm doing. I'm no June Cleaver and don't want to be. I'm learning to make my own ideal for being the homemaker for my household (with or without kids).
So, that is the highlights. I'll be posting here still until I decide if I need a clean slate blog or if I want to embrace my baby-crazy past and let the current blog evolve with me.
I'm off to listen to horror fiction podcasts (or maybe some Nine Inch Nails instead) while I dye some sheets black, clean the bathroom and mop floors. (Yeah, definitely NOT June.)
Wednesday, April 11, 2012
Mark a Win
The last two years have been all about becoming more healthy. I started with properly treating my depression and anxiety (check!), moved on to addressing my eating disorder and obesity (check and ongoing check!) and lately it has been all about dealing with chronic pain.
Yes, I have chronic pain. I consistantly averaged a 6-7 on the pain scale daily. (Anything over a 4 on the pain scale will trigger most doctors to hand you prescription strength pain killers.) This started when I got a pretty severe repetitive stress injury in my back and right arm at 25 years old. It took six months to go back to regular full time work and a year to get to a stable point. Even then I was marked off as having permanently lost 8% of my physical ability forever. I was told that I would have flare ups of back pain for the rest of my life and a higher chance of tendon issues and arthritis. I assumed this meant I should just push through the pain because it would never really go away. I came from a family of addicts (various) so I wasn't about to pop narcotics on a regular basis and risk addiction. So I ignored it...for the last 11 years. And, surprise, the pain got worse. I injured myself repeatedly and had horrible flare ups that left me crying on the couch unable to move my arms. It made my depression and anxiety worse. It make me binge more for comfort. It made exercise 10x harder and so I continued to gain weight....which made my pain worse. You see how this feedback loop goes?
Well, silly me, I didn't realize the damage I was continually doing. Not just to my body but to my brain! I knew about neural pathways and how they become more likely to follow well used connections, like a rut in the road, but I never made the connection to pain messages. I have spent the last 11 years making deep ruts in my pain pathways. Now some of my pain has nothing to do with actual physical injury! The damn buggers are just zapping my brain with pain messages any old time they feel like it! (Side note: It is a theory that this is a possible cause of fibromyalgia. My primary NP suspects I would meet the diagnostic criteria for fibromyalgia but I don't think I'll bother with that.)
Two years ago this would have seemed like a situation impossible to change. I would feel helpless and hopeless. Thankfully, I'm new-found stability gave me the platform to address this. About 6 months into this new pain improvement project and I feel fantastic! I've tracked my pain, discovered what helps and what hurts. I've re-organized my chores, my kitchen set up and learned to ask for help from Monkey and Author when I have flare ups. As a result, I'm spending most of my time at a 1-2 on the pain scale and managing to get more done that I did before! I have accepted that careful use of some mild narcotic pain meds are a good thing and that, if I don't ignore my pain, I'm less likely to need them. I've added a regular, non-narcotic med that is managing my nerve-related pain amazingly.
So I'm marking another win in the "Bear 2.0" project!
Yes, I have chronic pain. I consistantly averaged a 6-7 on the pain scale daily. (Anything over a 4 on the pain scale will trigger most doctors to hand you prescription strength pain killers.) This started when I got a pretty severe repetitive stress injury in my back and right arm at 25 years old. It took six months to go back to regular full time work and a year to get to a stable point. Even then I was marked off as having permanently lost 8% of my physical ability forever. I was told that I would have flare ups of back pain for the rest of my life and a higher chance of tendon issues and arthritis. I assumed this meant I should just push through the pain because it would never really go away. I came from a family of addicts (various) so I wasn't about to pop narcotics on a regular basis and risk addiction. So I ignored it...for the last 11 years. And, surprise, the pain got worse. I injured myself repeatedly and had horrible flare ups that left me crying on the couch unable to move my arms. It made my depression and anxiety worse. It make me binge more for comfort. It made exercise 10x harder and so I continued to gain weight....which made my pain worse. You see how this feedback loop goes?
Well, silly me, I didn't realize the damage I was continually doing. Not just to my body but to my brain! I knew about neural pathways and how they become more likely to follow well used connections, like a rut in the road, but I never made the connection to pain messages. I have spent the last 11 years making deep ruts in my pain pathways. Now some of my pain has nothing to do with actual physical injury! The damn buggers are just zapping my brain with pain messages any old time they feel like it! (Side note: It is a theory that this is a possible cause of fibromyalgia. My primary NP suspects I would meet the diagnostic criteria for fibromyalgia but I don't think I'll bother with that.)
Two years ago this would have seemed like a situation impossible to change. I would feel helpless and hopeless. Thankfully, I'm new-found stability gave me the platform to address this. About 6 months into this new pain improvement project and I feel fantastic! I've tracked my pain, discovered what helps and what hurts. I've re-organized my chores, my kitchen set up and learned to ask for help from Monkey and Author when I have flare ups. As a result, I'm spending most of my time at a 1-2 on the pain scale and managing to get more done that I did before! I have accepted that careful use of some mild narcotic pain meds are a good thing and that, if I don't ignore my pain, I'm less likely to need them. I've added a regular, non-narcotic med that is managing my nerve-related pain amazingly.
So I'm marking another win in the "Bear 2.0" project!
Labels:
author,
Bear 2.0,
CBT,
chronic pain,
depression,
eating disorder,
health,
mental health,
monkey,
optimism,
weight loss
Subscribe to:
Posts (Atom)